We often focus so much on the child having surgery that their brothers and sisters can become the "quiet observers" of the family. Siblings are deeply affected by epilepsy and surgery, even when they seem “fine.” They feel the worry and the hope, but they don’t always know how to put those feelings into words.
In this session, we will share key insights from The Alliance’s sibling initiatives about what brothers and sisters are actually thinking and what they need most. We’ll explore the complex mix of emotions they face, from anxiety over traumatic memories to the pride of watching a sibling recover. We will also highlight the unique strengths of siblings who often grow into resilient, empathetic advocates and lifelong companions.
Following the talk, a panel of parents will share candid, firsthand experiences on balancing life between their "surgical" and "non-surgical" children.
You’ll leave with practical tools to:
- Start honest, age-appropriate conversations that make siblings feel seen and heard.
- Validate their experience, acknowledging that what they felt truly mattered.
- Support their strengths, helping them navigate being the “helper” or the “strong one” without losing their own childhood.
- Prepare for the future, understanding how the sibling bond evolves from childhood companions to adult advocates.
Plenty of time will be reserved for Q&A, so you can bring your own questions and situations.
