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Friday July 17, 2026 9:00am - Saturday July 18, 2026 5:00pm CDT
Doctors know the medical side of surgery, but you are the expert on your child’s daily life. This registry is a way for parents to share how their children are doing months or years after surgery. By answering a few questions, you help researchers understand how surgery affects things like learning, moving, and long-term health.

Instead of trying to fill out forms on your phone in a noisy hallway, we’ve created a calm space for you to contribute to this important research.

  • Total Privacy: We have a dedicated room where you can complete the registry questions away from the crowds.
  • Everything is Ready: We provide the iPad and a comfortable place to sit so you can work at your own pace.

Who can use the room?


Any parent or guardian whose child (age 0 - 18) who has had epilepsy surgery (or is currently being evaluated for it) is welcome to stop by.


Ready to complete the registry now?


You can participate in the registry from the comfort of your own home. All you need is internet access and a compiter, tablet, or smart phone. 

🔗 GET STARTED


Sign-up form coming soon


Speakers
avatar for Monika Jones

Monika Jones

Founder + Executive Director, Pediatric Epilepsy Surgery Alliance

Friday July 17, 2026 9:00am - Saturday July 18, 2026 5:00pm CDT
Expo Hall

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