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Type: General Session clear filter
Friday, July 17
 

9:00am CDT

Welcome and Opening Session - Community Report from the Global Pediatric Epilepsy Surgery Registry + Neuromodulation Research Meeting Update
Our founder and Executive Director will open our conference with a welcome message and some logistics for you to remember while you're here. Then, she'll discuss what happens after the surgery is over? For many families, the hospital discharge is just the beginning of a new chapter filled with questions about development, therapy, and long-term quality of life. In this session, we turn to our patient-powered data source to find answers: the Global Pediatric Epilepsy Surgery Registry. We'll review the latest Community Report and highlight the outcomes that matter most to families. We will share aggregated, de-identified data contributed by hundreds of caregivers like you, covering:
  • Developmental Trajectories: Real-world insights into motor, cognitive, and speech progress post-surgery.
  • The "Invisible" Challenges: Shared experiences regarding endocrine health, vision, and behavioral health that often go unremarked in the clinic.
  • Navigating Care: How registry data is identifying gaps in post-surgical rehabilitation and school support.

Speakers
avatar for Monika Jones

Monika Jones

Founder + Executive Director, Pediatric Epilepsy Surgery Alliance

Friday July 17, 2026 9:00am - 9:45am CDT
Kalahari Ballroom 3001 Kalahari Blvd, Round Rock, TX 78665, USA
 
Saturday, July 18
 

9:00am CDT

Ask Me Anything: A Parent Panel
Saturday July 18, 2026 9:00am - 9:45am CDT
This candid session gives families the chance to ask parents who have been through the epilepsy surgery journey the questions they may be afraid to ask anywhere else. Panelists will share honest perspectives on decision-making, fear, recovery, setbacks, school, family life, and what they wish they had known earlier. It is an open, practical conversation designed to help other caregivers feel less alone and more prepared for the road ahead.
Moderators
avatar for Monika Jones

Monika Jones

Founder + Executive Director, Pediatric Epilepsy Surgery Alliance

Saturday July 18, 2026 9:00am - 9:45am CDT
Kalahari Ballroom 3001 Kalahari Blvd, Round Rock, TX 78665, USA

1:00pm CDT

Ask Me Anything: A Young Adult Panel
Saturday July 18, 2026 1:00pm - 1:45pm CDT
This open Q&A session gives attendees the chance to hear directly from young adults living with epilepsy or life after epilepsy surgery. Panelists will share honest perspectives on independence, school, work, friendships, mental health, medical care, and growing up with a complex neurological history. It is a chance to ask real questions, hear lived experience, and better understand the challenges and strengths of young adults navigating this stage of life.
Moderators
avatar for Roxanne Cogil, BS, CBIS

Roxanne Cogil, BS, CBIS

Executive Director of Regional Teams, Central Region, Epilepsy Foundation
Roxanne Cogil is the Epilepsy Foundation’s Executive Director of Regional Teams in the Central Region based out of Iowa. She has worked with the Epilepsy Foundation for over 14 years, has a Bachelor of Science Degree from Iowa State University and is a Certified Brain Injury Specialist... Read More →
Saturday July 18, 2026 1:00pm - 1:45pm CDT
Kalahari Ballroom 3001 Kalahari Blvd, Round Rock, TX 78665, USA
 
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